The following sites may help you better understand what your child is experiencing, how to seek support for them (and yourself!), and their healthcare needs.

A Guide for Parents (CCFA)

You have just learned that your child has a chronic form of inflammatory bowel disease (either ulcerative colitis or Crohn's disease); here's some helpful information!
http://www.ucandcrohns.org/printHtml/parents_guide.html

Caring for a Child with IBD (NACC)

A parents guide to IBD.
http://www.nacc.org.uk/downloads/factsheets/Childhood.pdf

Inflammatory Bowel Disease in Children and Adolescents (CDHNF- Kids IBD)

This site includes information on IBD, genetics, diagnostics, medical therapy, diet and nutrition, psychosocial issues, surgery, clinical trials and vaccines.
www.kidsibd.org

Inflammatory Bowel Disease (Kids Health)

It's estimated that up to 1 million Americans have inflammatory bowel disease. IBD occurs most frequently in people ages 15 to 30, but it can also affect younger children and older people.
http://www.kidshealth.org/parent/medical/digestive/ibd.html

Medical Issues Video (CCFA)

This program discusses medical issues affecting families and children living with Crohn's and ulcerative colitis, types of inflammatory bowel disease.
http://www.lungcancerfocus.com/focus_index.asp?f=ccfa_ostomy

My child has an ostomy (United Ostomy Association Inc.)

This pamphlet contains information about ostomy surgery, the care that ostomies require, and other information that might be helpful while my child is in your care.
http://www.uoaa.org/ostomy_info/pubs/uoa_brochure_child_has.pdf

Treating Children and Adolescents (CCFA)

Children require individualized treatment that takes into account the specific disease manifestations (location of inflammation in the intestines, duration, prior response to therapy), the psychosocial adaptation of the child and family, and the child's age and size.
http://www.ccfa.org/info/treatment/kidsmeds